Mr. Sith has been friends with Lisa Counterman since High School and for over 20 years since. She is one of the only High School friends he has kept in touch with. Lisa is an amazing woman, a wonderful wife and mother, and she is currently suffering through the worst thing that any parent can ever deal with; a child who is suffering and dying slowly in front of her eyes. Lisa lives in Colorado with her husband Jason and their three kids. Lexi, the middle child, is a sweet and wonderful child and needs our help.
I don't normally post about charities or ask for donations on this blog because it's not something I like to do. In fact. unless I know you personally, I probably won't ever do this again. However, I feel that the time has come when more needs to be done for this family. PLEASE, help them, we may be their only hope...
Lisa has already organized numerous events, like 5k's and bake-offs and all kinds of stuff, but she could always use some help, especially now. She is an out of work Special Education Teacher and her husband works construction, when he can get work at all. (Of course, with a large part of Colorado being flooded there might not be any work for a while) I asked lisa to explain Lexi's condition and what can be done to help her. Here is what Lisa has to say:
This is my daughter, Lexi, who is 12 years old. Both pictures are actually her and were taken only about 7 mos apart from each other.
Lexi has juvenile rheumatoid arthritis, as well as ulcerative colitis, an inflammatory bowel disease where her own body attacks her digestive system causing it to ulcerate and bleed. Lexi has been hospitalized 11 times since last November, each time with unbearable joint pain, stomach pain, and profuse bleeding. She required 3 blood transfusions within just a 2 week time span, and to try to give her at least SOME measure of relief, the doctors treated her with massive doses of steroids and immunosuppressor medications. Now, not only does she have this painful autoimmune disease, she also now has three additional debilitating diseases from the medications. She developed Cushings syndrome, a steroid caused disease where you get "moon face", gain a "fat pad" (often called a buffalo hump) on the back of your neck, and at 12 yrs old she now has purple stretch marks all over her body. She also developed adrenal insufficiency, which means if her body is under any kind of trauma or stress, her adrenal glands will not work and she will have organ failure unless an emergency dose of steroid is given quickly. Lastly, she was diagnosed 3 weeks ago with avascular necrosis, a loss of blood flow to the bones of her knees, shoulders, and ankles. This means that her bones are degenerating and as her physical therapist terms it, the bones look like "swiss cheese." She already uses a wheelchair about 50% of the time, now it looks as though her future is a permanent wheelchair. All of these "additional" life altering diseases because there is no cure to colitis. We are raising money for the Crohns and Colitis foundation (CCFA) because we HAVE to find a cure. 1.4 million other Americans deal with Crohn's disease or colitis every day, but it is all of these side effects that we are working to eliminate! Please help us and donate if you can - the CCFA is one of the few A-rated nonprofit organizations in the country and your donation is tax deductible. You can go to Lexi's donation website http://online.ccfa.org/Lexi and read more about how she was diagnosed. Every little bit helps! Thank you for reading!
(Lexi's mom who will fight to the end for a CURE!)
I have decided to take this a step further. While it is a great thing to donate to the CCFA, Lexi will not really see any money from that. Hopefully she will benefit one day from the research they are able to do with those donations, but Lexi needs our help right now.
Lexi was recently approved to go to the Cleveland Clinic by Medicaid. She will see a pediatric orthopedic specialist, Dr. Gurd, to help with her juvenile rheumatoid arthritis and some of the other diseases she contracted as a result of being on medications to fix the original diseases! However, a trip to Cleveland, OH from Colorado is an expensive one by air. Lisa and her family were going to drive to Cleveland, but their van just won't make it. Plane tickets are roughly $320 each and they need a hotel for Lisa to stay while Lexi is treated. It's just going to be too expensive for them. Lisa looked into staying at The Ronald McDonald House (A great place for families to stay, free of cost, while their child is getting medical treatment, but they don't take reservations. You have to ask the day you show up, and they have a long waiting list.) So I thought I would try to raise some money for them.
I have created an indiegogo campaign to raise some money for Lexi and her Mom to use for their Trip to Cleveland on the 29th of September. As I mentioned above plane tickets are roughly $320 each, they will need 2. The hotel in Cleveland is $90 a night and they will have to be there for up to 7 nights. They can eat cheaply, they have mastered that, but I think if we could raise $2,000 for them we could make a big difference in their lives. I have set up a special campaign on indiegogo and they will hold all the money that is donated until the end of the campaign, which is October 1st. I'm hoping that we can raise the money before they go on their trip, as It would be really great to have that money in had while they are on the road. Of course if we don't get it to them before the trip, getting the money after the trip will certainly help a lot. Even if we don't reach the entire $2,000 goal, the funds that are raised will be sent directly to the family. Indiegogo takes a percentage of the funds that are raised.If we reach the goal they take 4% of the total and if we don't reach the goal, they take 9% of the total. I plan to personally cover the cost of both fees out of my own pocket so what you see as the total money raised will be exactly what the family gets.
So PLEASE donate to help Lexi. Even a dollar or two can help. Just click on the link below that says I want to help Lexi!
While your donation to the indiegogo campaign is NOT tax deductible, you can make a tax deductible donation to the CCFA in Lexi's name by clicking here.
Help this blog post go viral. Tweet it to your friends, share it on Facebook, Pin it in Pinterest, Stumble it on Stumbleupon, Share it on Reddit, I don't care how you do it. The more people that see this plea the better chance we have of reaching our $2,000 goal and possibly raising money for CCFA too! And don't worry. Even if we don't reach our goal of $2,000, whatever money we do get will be sent to Lisa and her family.